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Pedal power for rare diseases

Marburg's St. Elizabeth’s Church was lit up with homemade green energy on Rare Disease Day

Drone picture of lit-up church
Marburg's St. Elizabeth’s Church portal was lit up with green, home made energy to raise awareness for patients with rare diseases.

On this day, light installations worldwide illuminate the fate of around 300 million children and adults with a rare disease. At CSL Behring, the patient is always in focus, especially patients with rare diseases.

That's why it was clear: we would again participate this year! The energy crisis posed special challenges: line current was out of the question, do-it-yourself was called for. So, throughout February, CSL Behring employees kept pedaling bicycles, charging the batteries connected to them.

A total of four cycling stations had been available for this purpose on the factory premises.

“At CSL Behring, we work hard to make a difference for our patients and the world we live in. With the energy crisis this year, we took this challenge even further: our employees generated the energy ourselves to power the light installation. So we can sustainably raise awareness for the challenges that rare disease patients face,” said Michael Schröder, Site Head CSL Behring Marburg.

Finally, the portal of the St. Elizabeth’s Church was lit up and the power lasted for two hours!

About five percent of the world's population suffers from rare diseases. In Germany, about four million cases are known. For more details, visit www.rarediseaseday.org